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selenayToday I managed one of those moments of brilliance that I sometimes have, and forgot to take my prednisone. The fact that I took all my other meds and the bottle was sitting next to my breakfast bowel as I ate apparently did not guarantee success with that. Oops.
Today is also the day that Mum is borrowing my car, so I could not simply nip home on discovering my mistake. Instead, I had to wait for Mum to get home so that I could call her and ask her to run out with the prednisone on her way to the hairdresser later this morning.
Unfortunately, prednisone is not a drug that you can healthily skip a dose on, not when you have been on a high dose for a considerable number of days. It is also one that has to be taken early in the morning because it tends to make you feel very 'awake' and taking it too late in the day produces a sleepless night. So waiting until this evening, while theoretically possible, would be a very bad idea if I plan to sleep at all.
I think that I'm going to need to take steps (possibly having a few tablets in a bottle at work as backup) to prevent this kind of mistake happening while I am on the prednisone. I'm not sure what the maintenance meds are like for timing etc., but it's brought home to me that I really need to be on top of everything with this. Forgetting meds has consequences and this is not a condition that you can mess with.
I saw the specialist again yesterday. He was lovely last week, answering all my questions and being generally reassuring about everything, and he was equally lovely this week. I definitely like and trust him and feel quite comfortable discussing things with him, which is excellent. He is now pretty close to 100% sure that I have ulcerative colitis rather than Crohn's, which is good to know. It seems to have a better day-to-day quality of life attached, although it also has the potential for making me very, very sick when I have a flare. My disease affects the entire colon quite severely, which is why I've started out on the strong meds, but he said that despite that there are good odds that I will never need surgery. Woo! I've even been cleared to eat as much fibre as I like because my progress is so good. Mutli-grain bread, here I come!
I still find it incredible that I was actually very sick for a long time with no real idea of that anything was badly wrong. From what I have been reading, the extent of the disease and the treatment that the specialist is following indicates that it had progressed a long way. Having other issues ("IBS", back pain, asthma, etc.) made it easy to find an explanation for every symptom and so I never pushed for an explanation. I just learned to live with it.
Today my work team went to a local cafe for our status meeting. As we left, I remembered that the last time we went there I was feeling so sick to my stomach that I couldn't eat anything and ended up just sipping herbal tea. At the time, I put it down to tiredness and the stuff that I was taking for my back. With hindsight, all those kinds of incidents (and there were many) were the UC.
It's nice to think that those things are going to be a rarity rather than an every day thing.
Today is also the day that Mum is borrowing my car, so I could not simply nip home on discovering my mistake. Instead, I had to wait for Mum to get home so that I could call her and ask her to run out with the prednisone on her way to the hairdresser later this morning.
Unfortunately, prednisone is not a drug that you can healthily skip a dose on, not when you have been on a high dose for a considerable number of days. It is also one that has to be taken early in the morning because it tends to make you feel very 'awake' and taking it too late in the day produces a sleepless night. So waiting until this evening, while theoretically possible, would be a very bad idea if I plan to sleep at all.
I think that I'm going to need to take steps (possibly having a few tablets in a bottle at work as backup) to prevent this kind of mistake happening while I am on the prednisone. I'm not sure what the maintenance meds are like for timing etc., but it's brought home to me that I really need to be on top of everything with this. Forgetting meds has consequences and this is not a condition that you can mess with.
I saw the specialist again yesterday. He was lovely last week, answering all my questions and being generally reassuring about everything, and he was equally lovely this week. I definitely like and trust him and feel quite comfortable discussing things with him, which is excellent. He is now pretty close to 100% sure that I have ulcerative colitis rather than Crohn's, which is good to know. It seems to have a better day-to-day quality of life attached, although it also has the potential for making me very, very sick when I have a flare. My disease affects the entire colon quite severely, which is why I've started out on the strong meds, but he said that despite that there are good odds that I will never need surgery. Woo! I've even been cleared to eat as much fibre as I like because my progress is so good. Mutli-grain bread, here I come!
I still find it incredible that I was actually very sick for a long time with no real idea of that anything was badly wrong. From what I have been reading, the extent of the disease and the treatment that the specialist is following indicates that it had progressed a long way. Having other issues ("IBS", back pain, asthma, etc.) made it easy to find an explanation for every symptom and so I never pushed for an explanation. I just learned to live with it.
Today my work team went to a local cafe for our status meeting. As we left, I remembered that the last time we went there I was feeling so sick to my stomach that I couldn't eat anything and ended up just sipping herbal tea. At the time, I put it down to tiredness and the stuff that I was taking for my back. With hindsight, all those kinds of incidents (and there were many) were the UC.
It's nice to think that those things are going to be a rarity rather than an every day thing.
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INCOMING GLOMP!
Date: 2011-02-18 11:48 pm (UTC)Please, please, please, please, PLEASE don't get properly poorly like that again? *squish*
Also, you like granary bread, too? \o/ It is the celebration food of champions! \o/
no subject
Date: 2011-02-19 04:46 pm (UTC)Specialist sounds good though, we like him also.