Insert witty title here->
Nov. 29th, 2011 07:38 pmThe appointment with the rheumatologist could definitely have gone better. On the one hand he examined me for hours with great thoroughness and admitted that the symptoms, history and reaction to steroids implied inflammatory joint disease.
He conceded that could be sacroilitis, which is the early stages of ankylosing spondylitis. I'd actually be happy with that because there are treatment options and doctors would be willing to help with the pain relief.
On the other hand, it should have responded to the Humira which is a big minus in the "Sel has proper back problems, not in her head" column.
I had run out of energy by then and didn't feel like explaining that the Humira only partially controls the colitis and needs other meds as well to keep me in remission. If I'd been thinking more clearly...
Anyway, he's ordered x-rays because if it's anything inflammatory, the damage of over six years of it should be visible now. If anything shows up, he'll contact me to come back in. Otherwise it's back to my GP for help, but as he doesn't like to prescribe analgesia, I'm on my own.
I was pretty depressed and hopeless last night when I finally got home. It's looking like yet again my back pain has no origin, no soloution and no help available. The only good thing is that it has been behaving slightly better over the last five days. While it did not help with the rheumatologist visit, at least I can start to hope that just maybe this flare is coming to an end.
Mum is not going home tonight due to the border agency strikes tomorrow. Sis has to because she has work on Thursday. We're leaving for the airport in an hour or so and we'll know then whether her flight is going or not. Hope she doesn't sit on the Tarmac for too long tomorrow!
In other news, I think that I want the new Zelda game for my Wii. It sounds awesome.
Also, Infinity Blade for the iPad rocks :-)
I should probably get on with useful things like composing my Yuletide fic, right?
He conceded that could be sacroilitis, which is the early stages of ankylosing spondylitis. I'd actually be happy with that because there are treatment options and doctors would be willing to help with the pain relief.
On the other hand, it should have responded to the Humira which is a big minus in the "Sel has proper back problems, not in her head" column.
I had run out of energy by then and didn't feel like explaining that the Humira only partially controls the colitis and needs other meds as well to keep me in remission. If I'd been thinking more clearly...
Anyway, he's ordered x-rays because if it's anything inflammatory, the damage of over six years of it should be visible now. If anything shows up, he'll contact me to come back in. Otherwise it's back to my GP for help, but as he doesn't like to prescribe analgesia, I'm on my own.
I was pretty depressed and hopeless last night when I finally got home. It's looking like yet again my back pain has no origin, no soloution and no help available. The only good thing is that it has been behaving slightly better over the last five days. While it did not help with the rheumatologist visit, at least I can start to hope that just maybe this flare is coming to an end.
Mum is not going home tonight due to the border agency strikes tomorrow. Sis has to because she has work on Thursday. We're leaving for the airport in an hour or so and we'll know then whether her flight is going or not. Hope she doesn't sit on the Tarmac for too long tomorrow!
In other news, I think that I want the new Zelda game for my Wii. It sounds awesome.
Also, Infinity Blade for the iPad rocks :-)
I should probably get on with useful things like composing my Yuletide fic, right?